Fictionista, Foodie, Feline-lover

Tuesday, July 24, 2012

Ms. Tomlinson is going to Washington

Photo by Mihal Tamasila
I have been in an eye study for the past three and a half years. My doctors are testing the use of a drug called Lucentis (already approved for age-related macular degeneration) on diabetes-rekated retinal bleeding. (Judi Dench has the age-related kind and she's going blind, so it's a serious condition.) I was an undiagnosed diabetic (none of the symptoms) for several years (no medical insurance) and damaged my eyes significantly before a routine eye exam discovered  my retinas were in bad shape.
Lucentis is a miracle drug.  When I started the study I was losing my color vision, which meant I really wasn't comfortable driving. I had a lot of trouble seeing gray cars if the morning was cloudy. Reading was a challenge. And I read for a living. Enter Lucentis...and three years later, I'm driving again. I'm reading books again.
So I've been asked to come to DC and talk to the Feds about the drug as part of the approval process. I am happy to do this for all the right reasons but also happy because my brother lives and works in the area and I'll be able to see him for the first time in a couple of years.
I've served on a jury. I vote. And now I'm testifying to a committee.  That about ticks off the list of participatory Democracy actions.  (I guess I could run for office.)  I have to say, I think it's kind of cool.
I'll be back on Friday. Stay cool.

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